Sunday Conversations 2026!

MassME will present four Sunday Conversations speaker events in 2026, two in the spring and two in the fall. We are also planning more informal group discussion events.

On Sunday, March 15, the speaker will be Dr. Aimee Nefcy, a medical toxicologist and emergency room physician who is now also an ME/CFS patient and has presented her story to medical providers. Stay tuned for more details and registration for this program, and for more information on upcoming events.

Newsworthy Events and Links

RECOVER Research Review Webinar: Long COVID trajectories in adults, February 10

Researchers in the NIH's RECOVER (Researching COVID to Enhance Recovery) project will present findings about the clinical presentation of Long COVID and how it changes over time on Tuesday, February 10, at 12:00 PM (ET) . Register here. Previous research review seminars can be viewed here.

Germany Declares 'National Decade Against Post-Infectious Diseases'

The German government has launched a ten-year initiative to find the underlying biological mechanisms and effective treatments for post-infective diseases. The 'National Decade Against Post-Infectious Diseases' initiative commits 500 million Euros over ten years ($540 million) and will specifically focus on ME/CFS. Federal Research Minister Dorothee Bär, in announcing the strategy, noted that "The need for research is enormous: for ME/CFS and post-viral autoimmune diseases there are still no simple solutions or therapies, and previous studies demonstrate the complexity of the disease mechanisms."

Webinar on Applying for Long Term Disability, February 11

Solve M.E. and Kantor & Kantor LLP are presenting a joint webinar on how to navigate long-term disability, long-term care, and legal planning while supporting someone you love, on Wednesday, February 11, from 3:00 PM to 4:00 PM (ET). Learn more and register here. They have also put together a one-page fact sheet.

The IACFS/ME Newsletter Returns!

The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) has restarted their newsletter. It is intended to be a less formal way to communicate important information compared to their peer-reviewed medical journal. Click here to read the first issue. They welcome feedback and contributions.

Disability Dialogues Book Group

The Newton Free Library hosts a monthly group that reads and discusses books exploring disability. The books range across fiction, nonfiction, and memoir, and include various disabilities, themes, and perspectives. The Disability Dialogues Book Group meets virtually on the fourth Tuesday of the month at 7pm. New members can join at any time. Questions about the book group can be sent to Jenni at jacosta@understandingourdifferences.org.

Blog Post: "Those Who Were Already Here, Learning to Live Inside a History I Did Not Choose"

Fred Rossi's recent essay is very moving and validating of the ME community, reinforcing the intersection of Long COVID and ME/CFS.

Spotlight: Dr. Heather Taylor

Understanding The Grief of Chronic Illness

In this episode of 'Grief is the New Normal', Dr. Heather Taylor, a licensed psychologist and grief specialist, discusses The Emotional Toll of Chronic Illness: Naming the Invisible Grief .

She explores the complex emotions and changes that come with chronic health diagnoses, sharing her own personal story as a patient. She offers insightful strategies for coping, redefining success and joy, and the importance of community support.

If you or a loved one are dealing with a chronic illness, this video may provide some insight and support.

Click here to watch.

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Massachusetts ME/CFS & FM Association

PO Box 390459

Cambridge, MA 02139-0459

617-471-5559 contact@MassMECFS.org

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