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Wellness Workshop |
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Each session features a different theme or activity followed by reflection, processing, and sharing.
*Due to professional guidelines, you must be a MA resident to attend.
The group meets monthly on Zoom, Tuesdays from 2:00pm - 3:30pm ET. There is one registration for all three sessions.
August 12 September 16 October 14 |
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New England Meet Up Group This group is for our younger Gen Z and Millennials to gather together and support each other.
*Due to professional guidelines, you must be a resident of MA, ME, NH, VT, RI, or CT to attend.
The group meets monthly on Zoom, Thursdays from 2:00pm - 3:30pm ET. Registration is ongoing, join at any time!
September 25 October 23 |
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The Sunday Conversations Team is on vacation until the fall.
Previously recorded presentations, slides, and other resources from past events are available on the main Sunday Conversations Page. |
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Support a Bill to Require Hybrid Access to Public Meetings in MA |
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Bill H.3299 in the Massachusetts Legislature would require municipalities to guarantee hybrid (remote) participation options for public meetings.
During the pandemic, remote meeting options removed long-standing barriers to political participation for those who are disabled, house-bound, or face other difficulties in attending in-person meetings. Ask your representative to support this bill that would guarantee continued access.
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Long COVID Research Study at Beth Israel Deaconess |
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Dr. Dan Barouch at Beth Israel Deaconess is starting a research study on the effectiveness of abrocitinib vs placebo for improving severe fatigue in adults with Long COVID.
You might be eligible if you are over 18 years of age, have had Long COVID symptoms for more than 2 months, and have not recently tested positive for COVID-19. Participants will provide blood samples and answer questionnaires during 6 visits over 4 months. Compensation of up to $75 and a parking voucher is available for each study visit.
For more information contact: BIDMC-CVVRTRIAL@bidmc.harvard.edu or call 617-735-4610.
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New Paper by Anthony Komaroff |
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Dr. Anthony Komaroff (Harvard Medical School, Brigham and Women's Hospital) and Dr. Robert Dantzer (University of Texas) have published a new paper in Cell Reports Medicine: 'Causes of symptoms and symptom persistence in long COVID and mylagic encephalomyelitis/ chronic fatigue syndrome'.
The paper provides a useful summation of shared underlying biological abnormalities in Long COVID and ME/CFS, with a focal premise that neural circuits disrupted by and reinforced by neuroinflammation constitute a symptom-generating pathway, "creating ongoing physiological vicious cycles."
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Second RECOVER-TLC Workshop |
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Registration is now open for the NIH's second RECOVER-TLC Workshop, 'Pathways to Treatments', September 9 -10, in Bethesda MD. NIH researchers will update the community on the progress toward treatment options for Long COVID.
In-person and virtual attendance options are available.
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Study of Housing Challenges for Those with MCS/TILT |
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Joy Stone, a graduate student at Eastern Washington University, is conducting research on housing challenges for those with Multiple Chemical Sensitivities (MCS) or Toxicant-Induced Loss of Tolerance (TILT).
Participants are asked to fill in a 26-question survey on their experiences with MCS/TILT. Some background information can be found here.
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2025 INIM Conference September 5 |
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The 2025 Institute for Neuro-Immune Medicine Conference will take place on September 5, from 12:00 noon to 2:00 PM (ET).
This year’s theme, Hope & Help for Long COVID & ME/CFS, will spotlight the latest developments in research and personalized treatment strategies for these complex chronic conditions. Both in person and virtual attendance will be possible. Tickets will be available starting in July, along with conference details including a list of speakers, topics, and the agenda.
As of this publication, the details for the event have not been posted. Click here for the latest information.
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The IACFS/ME Conference October 22-25 is Now Virtual |
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The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) is hosting their scientific research conference online from October 22-25.
The conference is aimed at clinicians, researchers, and educators, although anyone affected by or interested in ME/CFS, Long COVID, or other infection associated chronic conditions is welcome to attend. Learn more here.
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ME/FM Society of BC Article: When the Heat Hits: Managing Flares and Symptom Spikes
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Heat doesn't just make you uncomfortable when you're living with chronic illness - it can trigger significant symptom flares that feel overwhelming and unpredictable. Understanding why this happens and having a plan for managing heat-triggered symptoms can be the difference between a challenging day and a medical emergency.
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Massachusetts ME/CFS & FM Association is a 501c3 non-profit registered in the state of Massachusetts. |
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Massachusetts ME/CFS & FM AssociationPO Box 690305Quincy, MA 02269
617-471-5559 contact@MassMECFS.org |
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© ::Massachusetts ME/CFS & FM Association::. All Rights Reserved |
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https://massme.monkeypod.io/mailcoach/webview/campaign/cfa11f19-3810-4ba4-adb7-7c23be2b676e ::unsubscribeLink:: |