Voting is complete and we would like to both thank and congratulate the

MassME directors for 2026!

MassME has a new mailing address

Our organization began in the early 1980s as a linked set of local support groups for an illness then known as Chronic Epstein Barr Virus Syndrome. Our founder, Bonnie Gorman, a resident of Quincy, opened a post office box for the nascent organization at the main Quincy post office. In addition to her early work in establishing the support and services that MassME has come to be known for, the indomitable Bonnie has been doing the mail run for MassME ever since, through rain and sleet and snow and knee surgeries. She says, “The post office pickups have kept me engaged with all of our members for the last 43 years. Time flies when you are having fun!”

MassME has now moved our post office box address to Cambridge, where we have multiple volunteers who can take on this task. Please join us in thanking Bonnie for her remarkable service over the years!

Our new mailing address:

Massachusetts ME/CFS & FM Association

PO Box 390459

Cambridge, MA 02139-0459

Wellness Workshop

 Each session features a different theme or activity followed by reflection, processing, and sharing. 

*Due to professional guidelines, you must be a MA resident to attend. 

The group meets monthly on Zoom, Tuesdays from 2:00pm - 3:30pm ET.

Registration is ongoing, join at any time.

January 13

New England Meet Up Group

This group is for our younger Gen Z and Millennials to gather together and support each other.

*Due to professional guidelines, you must be a resident of MA, ME, NH, VT, RI, or CT to attend.

The group meets monthly on Zoom, Thursdays from 2:00pm - 3:30pm ET.

New members are always welcome!

January 27

Help us plan for 2026!

The Sunday Conversations team welcomes new members.

 Contact us if you are interested or have any questions. We'll follow up with more information.

MGH Brian Fog Study Seeks ME/CFS Participants 

MGH researchers are recruiting participants with diagnoses of ME/CFS for a study on brain fog. The study involves MRI, EEG, blood draw, and cognitive testing over two days (not necessarily consecutive) at the Martinos Center for Biological Imaging in Charlestown. Participants will receive $225 for completing the study, with a parking voucher provided or transportation fees covered up to $100. For more information, please email ebarringer@mgh.harvard.edu or call 617-726-8120.

OMF Journal Club

On January 21 at 1:00pm ET, Linda Tannenbaum (CEO and Founder) and Danielle Meadows, PhD (VP of Research Programs & Operations) will host a webinar with the objective of answering your questions about OMF and its research. 

Register for this webinar discussion here.

This heartfelt tribute was written by MassME member Nick Joliat in honor of his friend who had severe ME/CFS.

Last spring my friend Walker Storz died of ME/CFS in New Mexico. He was 30 years old.

I met Walker on an @MEAction internet forum about five years ago and recognized him as an
artistic kindred spirit. I never met him “IRL” but we stayed in touch and a couple years ago
when we were both a little less sick we worked on some music together. Walker was very
smart, very talented, had a mischievous and slightly deranged sense of humor, and above all
was insatiably curious about the world, a quality which shone even more brightly when he was
sicker than most people even realize you can be while still being alive. I wish I could’ve seen
where he would’ve gone.

Click here to read Walker's full tribute.

Contact Us

Massachusetts ME/CFS & FM Association is a 501c3 non-profit registered in the state of Massachusetts. 

Massachusetts ME/CFS & FM Association

PO Box 390459

Cambridge, MA 02139-0459

617-471-5559  contact@MassMECFS.org

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