Annual Meeting
 

September Events
 

Wellness Workshop

 Each session features a different theme or activity followed by reflection, processing, and sharing. 

 

*Due to professional guidelines, you must be a MA resident to attend. 

 

The group meets monthly on Zoom, Tuesdays from 2:00pm - 3:30pm ET.

 

Registration is ongoing, join at any time.

 

September 16

October 14
 
 

 

New England Meet Up Group

 

This group is for our younger Gen Z and Millennials to gather together and support each other.

 

*Due to professional guidelines, you must be a resident of MA, ME, NH, VT, RI, or CT to attend.

 

The group meets monthly on Zoom, Thursdays from 2:00pm - 3:30pm ET.

 

New members are always welcome!

 

September 25

October 23
 
 
 

Advocacy Corner

Support ME/CFS Funding in House Appropriations

In some rare good news out of Washington, the Senate stepped up to include significant support for ME/CFS in its recent funding bills. This includes continuing support for the CDC's Chronic Fatigue Syndrome program and a strong recommendation to the NIH that they implement the ME/CFS Research Roadmap.

 

The House will need to include this language to keep the provisions in the final House bill. Please encourage your representative to support this critical funding. Solve M.E. has provided a simple toolkit for this call to action.
 

Newsworthy Events and Links

MAESTRO Study Seeking Participants

The Tal Research Group at MIT — headed by Dr. Mikki Tal and home of our Annual Meeting's guest speaker, Beth Pollack — is conducting the largest clinical study in MIT's history. The MAESTRO study aims to increase our understanding of the base causes of chronic infectious illness. The study is ongoing, and they are still seeking participants who have Long COVID, acute or chronic Lyme disease, and healthy controls. 

 

If you are interested in participating in this study, you can find more information here.

 

CURE ID Survey on Long COVID Treatments

Tell the NIH and FDA what treatments did or did not work for you. CURE ID is a joint NIH and FDA project to collect case reports from patients with Long COVID. They recently re-opened the survey because they need more data, particularly on new treatments and treatments that did NOT work. You can start a new case report or log in to update a previous case report.

 

Scripps Remote Long COVID Clinical Trial

Scripps is conducting a fully remote clinical trial to evaluate repurposed drugs for treating Long COVID. They are currently looking for 1000 US participants -- sign up for the waitlist here to express interest in participating. They have not yet announced which drugs they will trial.

 

Solve Webinar on the Unified Platform, Tuesday 10/14 at 6:00 PM (ET)

Join Solve M.E. for a webinar about the Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions, a new effort that allows patients to submit data through symptom surveys, validated assessments, wearable devices, and health history to support research.

 

Register here or visit unhide: Solve Together to learn more.

 

The IACFS/ME Conference October 22-25 is Now Virtual

The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) is hosting their scientific research conference online from October 22-25.

 

The conference is aimed at clinicians, researchers, and educators, although anyone affected by or interested in ME/CFS, Long COVID, or other infection associated chronic conditions is welcome to attend. Learn more here.

 
 
 
 

Massachusetts ME/CFS & FM Association is a 501c3 non-profit registered in the state of Massachusetts. 
 
MassME Lighthouse Logo

Massachusetts ME/CFS & FM Association

PO Box 690305

Quincy, MA 02269

 

617-471-5559  contact@MassMECFS.org

 

© ::Massachusetts ME/CFS & FM Association::. All Rights Reserved

https://massme.monkeypod.io/mailcoach/webview/campaign/0da487e8-2017-4f7b-8816-6cccf1127d91 ::unsubscribeLink::