The Boston Waterfront 5K fundraiser was a huge success! The weather smiled on us this year, and everyone had a great time before the race, on the course, and celebrating afterwards.

Perhaps most importantly, we exceeded our fundraising goal of $20,000. Team MassME was the second highest overall fundraising team at the event. And five of the top ten individual fundraisers were on Team MassME, including our own Phil Chernin in the top position!

Enormous thanks to all participants: team members, those who came out to cheer, those who got the word out and cheered from home, and of course, all 200 generous donors. 

THANK YOU!

The Wellness Workshop is now an all-ages group!

The group meets monthly on Thursdays at 6:00pm. Each session will feature a different theme or activity followed by reflection, processing, and sharing. 

There is one more session in the May/June/July series on July 24th. Please join us!

*Due to professional guidelines, you must be a Massachusetts resident to attend.

New England MeetUp group meets monthly on Zoom on Wednesdays at 2pm ET.

This group is for our younger Gen Z and Millennials to gather together and support each other.

There is one more session in the May/June/July series on July 16th. Please join us!

Open to residents of MA, ME, NH, VT, RI, and CT.

The Sunday Conversations Team is on vacation until the fall.

Previously recorded presentations, slides, and other resources from past events are available on the main Sunday Conversations Page.

Capitol Hill Advocacy Week 2025

On June 24th and 26th, 230 ME/CFS advocates participated in over 150 meetings with congressional offices. Once again impeccably coordinated by SolveME, these meetings allow individuals to speak directly to legislative office staff, raising awareness of the debilitating reality of this illness and presenting a unified message about the need to protect critical research funding. These are obviously challenging times for this work, but advocates showed up nonetheless with their stories and their hope.

Advocates from Massachusetts met with the offices of both Senators Markey and Warren, and six of our nine Representatives: Stephen Lynch, Ayanna Pressley, Katherine Clark, Bill Keating, Jake Auchincloss, and Jim McGovern. There were four asks this year: restore the CDMRP funding for ME/CFS research at the Department of Defense; protect the CDC's ME/CFS program from cuts; fund the NIH's ME/CFS Research Roadmap; and explore ways to update the now ten-year-old NASEM (formerly IOM) report.

Kudos to those who gave their time, their spoons, and their stories in this effort. Thank you!

Patient-Led Research Collaborative Webinar on July 9, 1:00 to 5:00 ET

The Patient-Led Research Collaborative will host a webinar on Wednesday, July 9, 1:00 to 5:00 PM (ET) to share updates from the Patient-Led Research Fund (PLRF).

Ten researchers whose projects were selected by a patient panel will be presenting their work on Long COVID and ME/CFS. The webinar will also include a roundtable and talk on patient-led work.

Find the schedule here and register here.

Save the Date: 2025 INIM Conference September 5

The 2025 Institute for Neuro-Immune Medicine Conference will take place on September 5th, from 12:00 noon to 2:00 PM (ET).

This year’s theme, Hope & Help for Long COVID & ME/CFS, will spotlight the latest developments in research and personalized treatment strategies for these complex chronic conditions. Both in person and virtual attendance will be possible. Tickets will be available starting in July, along with conference details including a list of speakers, topics, and the agenda.

As of this publication, the details for the event have not been posted. Click here for the latest information.

The IACFS/ME Conference October 22-25 is Now Virtual

The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) is hosting their scientific research conference online from October 22-25.

The conference is aimed at clinicians, researchers, and educators, although anyone affected by or interested in ME/CFS, Long COVID, or other infection associated chronic conditions is welcome to attend. Learn more here.

Then: A Conversation With Myself by Elizabeth P. Glixman

For Elizabeth, being diagnosed with ME/CFS brought up intense feelings and questions about life. "Then: A Conversation With Myself" was a way to communicate her experience to herself and others. 

Learn more about Elizabeth and read her book, Then: A Conversation With Myself, here.

Contact Us

Massachusetts ME/CFS & FM Association is a 501c3 non-profit registered in the state of Massachusetts. 

Massachusetts ME/CFS & FM Association

PO Box 690305

Quincy, MA 02269

617-471-5559  contact@MassMECFS.org

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